Finally an update!

We've had another round of sickness at the Hubbard house over the last week and a half, so I'm way behind on posting. Poor Caroline has been sick with a fever, ear infection (her second) and horrible cold with lots of congestion and many sleepless nights. I ended up getting it too and only managed to work only one half day last week. Thankfully we both seem to be feeling much better this weekend. And just in time for a big snowfall it seems! They are calling for 3-7 inches for us this weekend, which here in NC might as well be a blizzard. Caroline has been on the propranolol for three weeks now and we are SO pleased with her progress. You can really tell a big difference now I think, especially if you compare pictures from day one to pictures from today. The home health nurse is coming once a week now, just to check her blood pressure. It has always been completely normal, if not on the high side at times (ironic). As for the blood sugar, the doctor decided that it is no longer a concern. I know that there are moms who follow this blog who have children on propranolol who became rather alarmed that Caroline's doctor was so concerned about the medication affecting her blood sugar. It's a long story, but basically Dr. Bellet (who is not Caroline's regular doctor but has been covering for Dr. Prose temporarily) consulted with a pediatric cardiologist at Duke who stated that they treat children with propranolol on two and three times the dose Caroline is on, and low blood sugar has NEVER been a concern or problematic side effect for those children. So thankfully we have been able to stop getting her up to eat and haven't had to check her blood sugar anymore, and she has been just fine. We are now giving her the target dose of the medication, which is 1 ml 3 x a day. We have seen NO side effects whatsoever. Such a different experience than the steroids! We are thrilled! Dr. Prose is back from his trip and will resume Caroline's care. We will be seeing him next week. I'm really excited to see what he thinks, since he hasn't seen Caroline since the day we started the treatment. Here are some pictures of our precious little one. Let us know what you think? Can you see the difference?

Day One

Day 22