Thursday, December 4, 2008
Chance encounters and Duke update
We went back to Duke today for an appointment with Dr. Prose. He thinks it's time to wean Caroline off the steroid. Yay!! For the next 10 days, we will be cutting her daily dose in half, and then in half again for the following 10 days before finally stopping it altogether. So in about another month, we should be DONE! Our prayer now is that the hemangioma is finished growing, so that the steroid won't have to be started again, and that Caroline's stomach problems were in fact due to the steroids and that she will be able to soon tolerate formula and solids. We also requested a consultation with the doctor who is an expert at Duke in laser treatments. We would like his opinion regarding when/if to do the laser treatment now that the steroid treatment is ending. That appointment is not until February, as well as our next appointment with Dr. Prose.
In the past month or so I've had two "chance encounters" with mothers whose children also had hemangiomas on their faces. One mother approached me while at Duke to tell me that her daughter also had a hemangioma on her face, and started laser treatments at 8 weeks old. She provided me with the name of the doctor at Duke and highly recommended him. This is in large part what encouraged Zack and I to request a consultation with this doctor.
Another mother I ran into in the middle of Old Navy. She had her little girl with her, a toddler, and she had a hemangioma on her face in the EXACT location of Caroline's, except under the opposite eye. Anyone who knows me knows that it is out of character for me to approach a perfect stranger and strike up a conversation, but something told me I had to talk to this mother. Once I told her about Caroline, she seemed equally as comforted to hear from another mother facing the same situation. She shared with me that her daughter, born July of 07, was also on steroid treatment until she was about five months old. After that the hemangioma began disappearing on it's own. Now only a slightly red area is left. A visible representation of what is to be for Caroline. The Lord truly sends encouragement when you need it! He has taken care of all of the details so far, and I know He will now.
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2 comments:
Hi! I've been following your blog since I stumbled upon it in a google search on Dr. Prose. My 8-week-old baby has a hemangioma on his face and we have an appointment with Dr. Prose for our first consultation today. Owen's isn't as pronounced as your sweet baby's, which is why we haven't been to a dermatologist before now. However, we are noticing that it is growing pretty rapidly compared to how it started. Our pediatrician advised us to just "let it run its course" but I wanted a second opinion. I'm so happy to hear that you hold Dr. Prose in such high regard. You give us hope. I hope you have a Merry Christmas! I'm sure she will be so much fun and you are looking forward to it so much!
Take care,
Shannon
Hi Kate!!
First let me say that Caroline is a doll!! She has the most beautiful eyes! She looks so much like you, lucky girl!!
I saw your blog for the first time a couple of weeks ago, just before I received your note with the address in it. Mom and Dad hadn't been keeping me posted on Caroline, and I hadn't seen a picture of her since you were in the hospital, so I didn't know about her hemangioma, until Dad gave me the website address. I am really sorry you and Zack and precious Caroline are having to go through what I know is a very stressful situation. This past summer Eva Claire had an infection in one of the lymph nodes in her neck. She recovered fully, but at the time she had to be hospitalized for several days and be put to sleep while the doctor did a minor surgery, and it was extremely hard to feel so helpless. I know you are very worried, and although I don't know exactly what you're going through, I can relate! Anyway please know that you are all in our thoughts and prayers. I will keep up with Caroline and her progress through your blog. If you have time, please send me your email address, and we can keep in touch that way, too.
Love,
Alicia
aliciasn@yahoo.com
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